More Evidence of the Prescription Medications Crisis

Following Mondays post of my personal experiences last week,  I’ve been collating some of the evidence showing just how big a problem this is; the conditions below in Bold are just some of the Health problems affected :

Chemist dispensers complain shortages of Drugs are “killing” them

That is sad BUT ‘killing THEM? Let us focus on outcome of the sudden unavailability of a drug such as Adalat which controls blood pressure and angina and, or, Furosemide used to treat high blood pressure, heart failure and oedema.

And just what will happen when  patients who rely on  Antidepressants, drugs for Chronic and Acute Pain Relief,  to control their Epilepsy,  and women taking HRT suddenly find themselves Without their Pharmaceuticals?

Hidden within another article regarding medication shortages – Medicine shortages force government to limit HRT drug exports  it was reported the Department of Health and Social Care (DHSC)  are allowing pharmacists to issue Different strengths of fluoxetine, better known as Prozac, used to treat  major depressive disorder, bulimia nervosa , obsessive-compulsive disorder, panic disorder, and premenstrual dysphoric disorder patients! This is despite one of the many warnings given by the drug information included inside packages: Do not take this medicine in larger or smaller amounts

So the UK Government is advising dispensers to Issue the Wrong dosage – This could quite possibly “Kill” People.

Despite the growing amount of evidence regarding the shortages of medication,  the Healthcare Distribution Association, (HDA) recently published this-

Representatives from the largest wholesalers will visit pharmacies across the UK to “dispel some of the misconceptions” around medicine shortages

Herein we are told Although this problem has been referred to as ‘drug shortages’, often the real nature of the problem is the delay between a patient handing over their prescription and actually getting the medicines they need” !

They also produced an Infograph suggesting a plethora of other possible ‘reasons’ for these shortages, which remember don’t exist, including “Acts of God” !

So either God, or we patients are to blame;  NO this is completely untrue, it is not our fault, nor that of a deity that medication is unavailable

Martin Sawyer CEO of aforementioned HDA, wrote  “Hardly a day goes by without the reported shortage of a medicine – and rightly so. For one patient to have to wait to receive their medication is one too many.”   Sawyer proposes the Medicines and Healthcare products Regulatory Agency (MHRA) “should enforce stricter laws on wholesale businesses hoarding supplies to help prevent medicine shortages

Hmm, the HDA goes from a denial of shortages – to blaming patients and then  independent suppliers of pharmaceuticals for the problem in less than a week?

So just Why is this happening? According to the Department of Health and Social Care (DH)  these shortages in medication is something that happens “occasionally” and  “most shortages are because of problems in production” but absolutely it is Not down to Brexit!

Regardless of these claims, most worrying is Professor Dame Sally Davies, the Government’s outgoing top adviser on health matters said yesterday “ministers could not guarantee that lives would not be lost due to a lack of resources“.

Given the evidence we have seen so far, I think it is justified to say some people are going to Die because of these shortages. And personally I strongly feel, that any life lost as a result of no, or the wrong dosage/type of medication; would be tantamount to State Manslaughter

 

 

Mental Health – Talk or Stay Silent?

Also at http://www.huffingtonpost.co.uk/jayne-linney/mental-health-talk-or-stay-silent_b_9416632.html

Today Mind have launched their “Take Off The Tape” Campaign which focusses on Anxiety; their website states “Do you talk about what’s most worrying you? Or do you keep your mouth shut about things that make you anxious?… Stop being silenced by your anxiety“.

Whilst as a mental health sufferer and counsellor  I welcome this recognition of the dangers and devastation of living with poor mental health, and can understand how talking openly about their anxieties and concerns might be of some help in some cases. The relief of ‘getting things of your chest’ can help you feel lighter and may for  while,help with the symptoms but faced with a personal trigger and you’re right back where you were, because talking does not help deal with the cause of your mental health.

Mental Health is currently being widely acknowledged, from the media to government  as a real problem, This may have something to do with the growing numbers of people experiencing poor mental health, this rise is being witnessed in children, employees, new mums and the Armed forces, to name just a few of the recognised groups , but whatever the reason, most reports concur the rise is down to  cuts to services and the pressures of the Austerity agenda; even the Governments ‘pledge’ for a revolution in mental health treatment and the accompanying investment in services,  accepts poor Mental Health is to do with poverty.

Living in Poverty from the real fears of not being able to manage financially to the social isolation it causes is extremely stressful, and excessive stress is an established trigger for depression (i). Add to this ill health, another one of the biggest causes of stress , and you regularly have a situation for mental melt down; and we at DEAEP are seeing numerous examples of this. People are coming to us trapped in this viscous cycle of poverty & depression, most of them are experiencing benefit cuts and are being offered no option other surviving with less than they need; and in the most extreme cases or being institutionalised. Is it any wonder these people are finding themselves experiencing extreme pain, exasperation of existing conditions and Mental Health problems?

What I find most disconcerting, is whilst mental health as a health issue, is experiencing the benefits of publicity and recognition;what is less acknowledged is the associated rise in penalisation of those of us with poor mental health. We are at a much higher risk of being detained against our will, with a 9.8% increase, almost Double the figures for 1013/14,  of people being detained under the Mental Health Act; We are more likely to be sanctioned if we claim benefits with a 600% rise over the past four years, and whilst 6,122 of us over the age of 10 committed suicide in 2014, the rates for both women and men outside of  institutions rose.  Given this it seems we’re equally damned if we do admit our vulnerabilities and Talk.

 

 

 

i Makosky, V. P. (1982) ‘Sources of stress: Events or conditions? ‘ In: D. Belle (ed.) Lives in stress: Women and Depression, pp. 35–53. Beverly Hills, CA: Sage

Tory Housing Transformation Nothing more than another attack on the poorest

Sadiq Khan was in yesterday’s Mirror offering his opinion on the Tories “plan to transform sink estates“;  he speaks of how “having a secure and affordable home meant my parents could build a better life for me…”; this was also my experience.

My mum when widowed January 21 1965, was in the process of moving home, with my dad they’d bought a new bungalow  and sold the terraced house they’d lived in for a decade, completing on Saturday 16/01/65. Due to the insurance documents not being signed at the same time, when my dad died of an unknown chronic heart disease on the Thursday, she and I were made homeless.

After two years of ‘making do’ at my grandparents we moved into a maisonette, on a new and at the time, state of the art council estate. Over the past 49 years the same estate has gone from being the flagship for Leicester City Council to so-called sink estate, now surrounded by  iron bars. Yet it was that estate where I grew up, went to grammar school and ultimately university and on to post-grad education.

In 2012 “St Matthews Estate in Leicester is classed as the second most social deprived estate in the country” and yet despite this, my now 85 year old mum, still lives there out of choice. She has friends who have also lived there for decades and she receives support and help from the now majority Somali community; when she had a fall five month ago it was a young Somali man, who she didn’t know, that helped her home.

Given mums home is on ‘the second most deprived estate” it is likely that St Matthews will be one of those estates Cameron will want to transform. Some people will hearing/reading about this will think it a good idea, but my experience and that of  Sadiq Khan, and perhaps more surprisingly The Economist, this transformation will destroy far more than it builds.

Not only will the residents be moved away from where they are comfortable and have the support networks vital for safety; as the Economist points out “Unnervingly, poor children seem to fare better in poor neighbourhoods.” The article ‘paradox of the ghetto‘ shows that “poor boys living in largely well-to-do neighbourhoods were the most likely to engage in anti-social behaviour, from lying and swearing to such petty misdemeanours as fighting, shoplifting and vandalism”. As a long term youth worker I suggest this has to do with the need to be accepted, rather than these boys being inherently ‘bad’. The need to fit-in is well documented and experience has shown me that where acceptance is not an option, being feared is the next best thing, and thus young people from these so called ‘sink’ neighbourhoods become the self-fulling prophecy.  This theory is also supported by Professor Tim Newburn who says ” Living alongside the rich may also make the poor more keenly aware of their own deprivation”; therefore in order not to become the victim of the bullying being the outsider often results in, the poor child acts out. Further living in a community where families know each other and communicate, results in young people knowing any unsocial behaviour will be reported back; in my experience this makes you police yourself for fear of the wrath of mum.

Given the above I would suggest the Governments plan has far more to do with their aspiration to abolish social housing, rather any real  “ambition” to enable the families living there. Reading the ‘Notes to Editor’ on the official press release, it claims ‘successful regeneration’ has already occurred at Woodberry Down in Hackney and Packington Estate in Islington However it does not address why both estates have been rebuilt with only 50% social housing, nor what happened to the other half of tenants?   I can only imagine what will happen if Leicester City Council allows St Matthews to be ‘transformed’ (and the legacy of previous decisions made by our City Mayor strongly suggests it will); will my mum be forced into an unsuitable poky flat away from her network of friends and the close proximity of family, and it so how will she cope? This terrifies me as I’m only too aware of her attachment to her home.

The plan will also destroy the real community that exists on the estate, a community of former refugees who have already been forced from their homeland and yet have come together to create a neighbourhood of safety and opportunity. This is what precisely what the designers of St Matthews Estate desired 50 year ago and demonstrates exactly what Cameron’s Transformation plan ignores.

 

 

 

Who can help Benefit claimants when Charities are no longer Impartial?

There was a spate of example towards the end of last year where Charities were warned they were at risk of closure, or at least sanctions, for acting ‘Politically

  • the chair of the Trussell Trust was told “he must think more carefully otherwise “the government might try to shut you down”.
  • The Global Warming Policy Foundation were advised ‘concerns were raised that the charity was promoting views that were of a political rather than an educational nature’.
  • Oxfam was been rapped by the charity watchdog for not taking sufficient steps to avoid appearing politically biassed in a social media campaign which criticised the Government’s austerity programme earlier this year.

These are only examples, of how a breadth of Charities are experiencing this, what I feel is bullying.

This behaviour by the powers that be, is despite Government guidance which states:

Can a charity carry out campaigning and political activity?

The short answer Yes – any charity can become involved in campaigning and in political activity which further or support its charitable purposes, unless its governing document prohibits it.”

Although since then the Government’s introduction of the Lobbying Act has resulted in a report by the Commission on Civil Society and Democratic Engagement (CCSDE) stating “The law makes it almost impossible for charities and campaign groups to work together and speak out on politically contested issues in joint coalitions”.

Given the above, how does this affect the people needing help from the very organisations established to meet their needs? I have received today an example of precisely this; the situation is a benefit claimant who is also a disability activist, at tribunal

“I ended up saying all the things in the tribunal that I was warned by the CAB not to say. They kept saying they were not allowed to have a political opinion. I replied that I didn’t think it could be seen in other than a political light. I ended by telling them that if it goes against me I will be likely seeing them again shortly as my six months is up and I will reapply right away and that’s how ridiculous the system is. I was sent outside while they deliberated. When I was called back in I was asked if I was likely to top myself if the decision was negative. I replied that that was always an option but I would be much more likely to kill one of the oppressors. I was actually quite surprised to have won as I figured I may have gone too far”

So, here the Citizens Advice Bureau is advising people not to have an opinion about the Welfare Reform regime and how it affects them! Our experience at DEAEP is the Tribunal panels ASK questions that require such a response, they usually understand it is the process established by Welfare Reform that has created the problem; and they recognise that Welfare and Disability issues are by their very nature political, something CAB don’t appear to understand.

This reluctance by CAB to appear Political might be as a result to ensure they maintain their funding, and this is a real issue when it comes down to giving appropriate support to individuals, further I believe this is eludes to a greater problem -the morality of the voluntary/3rd sector in general. When community organisations begin they usually are in response to need but…as they grow to be successful, there is a shift from the ‘need’ to a want. The project then spends much of its time searching and bidding for money to allow it expand and employ people; thus begins a vicious circle where workers in fear of their employment, are forced to focus their energy on justifying and gaining financial support for their existence. Hence the original purpose becomes skewed if not lost.

This is an issue I’ve witnessed hundreds of times in my professional life, and it lies at the very problem of the ‘voluntary/community sector’, whose very ethos should be, to work itself out of existence; and it becomes an even greater issue when Government interferes with the actions of these vital projects.

It is an issue we directors of DEAEP are experiencing now, how can we finance the necessary expansion of our service, when any ‘funding we might access, comes with such boundaries? Our response was to set up as a social enterprise, aiming to sell bespoke training the other companies in order to continue to fund our peer support element; this prevents us accessing many funding streams and means we are growing very slowly, but at least we are able to offer truly impartial support  to those we work with.

What are the Parties real plans for benefit claimants post 2015?

The people responsible for the excellent Benefits and Work site ask “What do the parties really have planned for claimants after the next election?” for their November newsletter; as inspiration they offer their findings – the Ministry of Justice  are refusing to release how much they have raised  charging benefits claimants to appeal to tribunal as apparently it would cost too much to collect and collate the data. They also ponder how long before ESA and JSA claimants are also forced to use prepayment cards, to prevent them spending their benefits on anything other than “essential” items?

This got me thinking and I can’t help feel that short of a miracle, all benefit claimants will lose the right to full Housing benefits for anything other than a room/s in shared accommodation; this will be an extension on the existing rule for single people under 35?

Disabled people will continue to lose benefits until we are all forced to become house/room bound and with free limited internet only to DWP/official websites?

Hospital beds will be rented out by the hour, with benefit claimants being treated separately?

Benefits claimants who work less than full time will lose the right to vote?

I know these ideas are extreme but – we’re witnessing our rights to freedom being removed when we protest, we already pay to put our cases when we’re wrongly treated by civil servants, and our hospital are being privatised day by day, what is to stop Politicians furthering the aim of social control?

As you’ve no doubt guessed my mood is currently dark, so over to you readers, let me have your ideas or even better post them to benefitsandwork.co.uk, tweet them to @benefitsandwork  or leave them at: https://www.facebook.com/BenefitsandWorkPublishing?fref=ts.

Please copy me in – I’m intrigued 🙂 either leave as comments below,

Tweet @JayneLinney  / on Facebook

 

 

 

DWP Breaks its Own Rules when threatening Support Group Members

Further to my post earlier this week, today another example of the most seriously ill disabled people being told they must attend work focussed interviews or else be sanctioned; never mind this is in direct conflict with the DWP’s own guidance which states :

Support Group

If you have a condition that severely limits what you can do, you’ll be in the support group. You’ll not be expected to look for work and we won’t expect you to take place in any work-focussed interviews”.

How the DWP are going to Spin this is yet yo been seen; what I do know is this is yet another time this unelected Government has deliberately broke it’s own rules and then Lied about it!

This ongoing Discriniation against Disabled People is  Totally Unacceptable & I can only hope people say ENOUGH

It is Time to Join the Truth Campaign and Sign the Petition  to STOP The SPIN.

#NOWPetition #Impeach DWP

In Memory of My Pop a WWI Soldier, who Fought for Honesty and Freedom

As a child of the Sixties I absorbed the new ‘freedoms’  of that era like a sponge; I watched the development of  the sexual revolution which, to me was everyday women finding a voice, previously before only accessible to the middle class and above.  I read about the Civil Rights movement, and became sickened by the Racial prejudice and discrimination; particularly as I was friends with many children whose families had come to the UK as refugees from Uganda. These struggles instilled me with a personal power, no longer did I have to defer to my ‘betters’, I could and should, question and challenge my elders.

Having said this, my strongest influence at home at this time was my granddad (Pop), he was born in 1899 and lied about his age to serve his country in WW,  only for him to be the victim of a rogue grenade. This resulted in him spending his life in and out of hospital undergoing surgery after surgery, as the countless pieces of shrapnel he carried in him moved towards his vital organs. I adored him, but he was a man of his time born when Victoria was still Queen, and we had endless discussions about right and wrong. I like to think he really heard me when I argued for Equality, but maybe he indulged me as his only grandchild, either way he listened, and even when we disagreed he never shot me down, he taught me to debate and for this, and everything else he was to me, I adored him .

With today being the Centenary of  WWI, these memories of my pop are more emotive than ever, his desire for honesty was I believe, born from his experience of soldiering, he was sold a story of  ‘Britain needing him’  how he was fighting for freedom and this would be “The War to end All wars”; in return he was damaged, physically and emotionally. He never spoke to me (or any other family members) about his experience, but we lived with its effects.  Today I’m convinced he would have been diagnosed with PTSD, he certainly suffered from brain damage, being blown up does that, and this revealed itself in his occasional outbursts of rage. However, despite the pain he lived with for the next 70 years, he always demanded Truth; whether this be because he lived with the fact he suffered as a result of the Lies sold by the ruling classes I can’t say, but knowing him I can’t help but think this is so.

These experiences laid the blueprint for who I am today, I remain committed to Equality, I fail to understand how prejudice and discrimination are anything but destructive, and I believe wholeheartedly in Truth. In this week as I especially remember Pop, I read that  Lord Freud  has been proven to have Lied AGAIN,  joining Mark Hoban, Esther McVey and Mike Penning  to become the Fourth DWP Minster to have Made the SAME LIE – Impact Assessment are Impossible.

This default position of Lying when proven incorrect is unacceptable, the reality is the Lies Politicians spew out today, are resulting in pain as those told 100 years did; and albeit in much lesser numbers, people are still Dying  as a result of the Policies they Lie about.

I can’t help but think it must be common knowledge that Politicians Lie, they’ve been doing it for at least a Century now, and maybe this is the reason people don’t feel the need to demand it should End and End Now?

I can’t and won’t accept this, to do so would not only dishonour my Pop, but I would feel  in collusion with these Lying Ministers, and this I will not do. For these reasons and because I feel if We don’t scrutinise this unelected Government No one will; I continue to urge you all to please share our petition demanding TRUTH from Parliament; the House of Commons has responded to the Recommendations of the Select by basically informing us the DWP is doing a great job!

If you share my belief , this response is yet another example of Government Spin – please Sign, Share and talk to everyone about the NEED for The TRUTH Campaign.

 

#NOWPetition #ImpeachDWP