Chronic Illness and Prescription Medication – No MEDS No LIFE

I am currently recovering, very slowly, from a period of withdrawal. Not from illegal substances but from unobtainable prescription meds! We’ve all seen the Post Brexit warnings about this but I can assure you after discussions with several independent and high street pharmacists ALL medication is difficult to get. I spent 5 days last week totally and immediately without my high dose Preganalin (an epilepsy drug also used to control nerve pain); and can honestly say I can not ever remember feeling as ill, I literally had to stop myself swallowing packets of diazapin, please ignore spelling I’m still really fuzzy.

Symptoms included Gastric flu, an acute depression attack, anxiety, uncontrollable shakes, flushes and chills and total inability to function.

Very fortunately for me on day 5, Friday, my friend after chasing around the City managed to get some tablets on Friday pm.

Within 4 Hours, the nausea, and the worst of the shakes had abated and Sat morning I felt Alive; I mean cognitively Alive, the anxiety, depression and all associated head fuck had stopped completely; I emotionally was as stable as I ever am.  Yet physically I am still very weak and having to retrain my stomach to accept food.

This is Already people, Think what is going to come over the next few weeks! Please take this as a warning, check with your GPs, pharmacists, etc, and if you discover what we did here in Leicester, and what friends in Essex did – Please let me know.

*We are passing this and similar tails onto Jon Ashworth (Shadow Health Minister & Leicester S MP) This Must be addressed Now.

I seriously do not know if I could go through that again and am working on ideas to support me not to (which I will disclose another day) BUT we regular consumers of Pharmaceutical Products Need to Protect ourselves now.

We will be the earliest casualties of this Severe Lack of Medication in UK, but it will affect Everyone – ALL Drugs are Disappearing across the UK, if the local Chemists are to be believed and I ask you Why would they Lie?

*We will also being communicating with the local NHS Trusts about this .

Take Care All and keep me posted please on this issue Nationwide

The Criminality of a Price on Life

In yesterday ‘s Guardian the Government is facing calls to investigate ” a deeply worrying trend in the number of deaths from cocaine use”, 432  in 2017 compared with 112 in 201. I would never dispute any needless death is sad, nor am I unsympathetic to the reasons behind drug use; but it is a choice.

Compare this to a report on Wednesday by Welfare Weekly who demonstrated “111,450 ESA claims were closed following the death of claimants between March 2014 to February 2017″. These people Died through NO fault of their own and indeed may have be as a result of Government Processes.

Desperately this is not new, back in 2014 I was writing about the number of Chronically Sick and Disabled people dying waiting for benefits where ” between January & November 2011 10,600 disabled people either in receipt of or awaiting benefits died”

I called it a Scandal then, now I can only call it Criminal and my real question is Where is the Call for this to Stop ?

I  don’t know if there is one place which has recorded all the deaths of sick and disabled people either waiting for, or after losing their Welfare Benefits;  Steve Topple at The Canary used the Welfare Weekly figures and calculates

the deaths per day were:

  • Slightly more than 7 in the “unknown” group.
  • 9.02 during the assessment phase.
  • 10 in the Work Related Activity Group (WRAG).
  • Almost 75 in the Support Group.

Further there are numerous petitions, reports and investigations undertaken by ourselves as a disabled community through to the UN; all attempting to identify – Why have so many of our most vulnerable citizens died before their time.

Despite the struggles to address this over the past seven or eight years it continues; ergo I feel compelled to ask When and by Whom will the #DWP, who as the benefits administrator must surely be the responsible party and the Ministers of State who Manages said department be held to account?

Nothing will bring back those we have lost, but surely no one will disagree, it well past time those responsible paid the price for these needless Deaths – it is Time For The TRUTH.

PIP – Permanently Irritation Persecution?

Recent experience leads me to ask the question what does is PIP – Personal Independence Payment OR Permanently Irritation Persecution?

In February  I wrote about how following the DWP rules resulted in my health deteriorating, since then it has been one thing after another. The report from Capita following this assessment  was dire, therefore it was back into the Mandatory Reconsideration process once again, and duly into the request for Tribunal.

I duly received my date for tribunal on May 26th and whilst preparing myself to attend at 10.00 am that morning I had a call from the court telling me the panel had adjourned the event as they wanted further information from my GP. This stunned me and I was left dealing with the vast amount of adrenalin coursing through my body, but I tried to focus on how this delay might well be a positive thing.

In regular circumstances I should have heard nothing more until the information had been accessed and the new date set; however this is the DWP we’re dealing with. Last Saturday (and I’m becoming convinced all of these letters are posted to arrive at the weekend), I received a letter from Capita stating as a result of my recent application for PIP I needed to arrange an assessment!! Yesterday whilst I was at my mums, my partner phoned the DWP and eventually was told this new assessment had been requested by the tribunal; he also called Capita who arranged for the assessment to be next Monday 13/6/16 .

Today I received a form from the tribunal  requesting my permission for them to contact my GP, so I called them to ask about the assessment request; only to be informed by the court they had not, nor could they, request another assessment!

I immediately phoned the DWP and after repeating the information to told my partner, was informed by this call centre person (Colin) they could not understand why he’d  been told this, and as far as Colin could see a new case (claim) had been opened on 25/5/16 and this was the reason for the assessment?!  After informing Colin of my Capita appointment he agreed to email the case manager for an urgent call back.

This is just another episode in the ongoing saga of my PIP claim; this causes me to question if the competence levels of the DWP are diminishing ever lower or is PIP merely another way for those in Government to further persecute the sickest members of society? What I do know is this seemingly endless torment is seriously screwing me up.

 

Here We Go Again – DWP to Repeat the ATOS Disaster ?

I’m sure I’m not alone in being totally unsurprised, albeit sick to my stomach at the latest revelation to be leaked from Tory proposals for Benefits, the drastic cutting of  ESA; it appears that new claimants placed in  WRAG will only receive 50 pence a week more than JSA. This has led me to wonder if this extreme reduction has anything to do with the increase in the number of people claiming out of work sickness or disability benefits?

The fact the cut was ‘leaked’ on the same day, and to the same source as the claim, Maximus will be the company taking over the contract from ATOS, also leaves me unsurprised. I can imagine the key players from DWP and Maximus sitting around the table and plotting this decimation of ESA as a part of the contract. The key aim of Welfare Reform has always been to slash Benefits, irrespective of need, and now seemingly wants to privatise all out of work benefits; therefore given Maximus’ existing  involvement in running the Work Programme, and the new Health and Work programme  this pairing seems a perfect match.

However when John Pring initially suggested, Maximus was the preferred bidder to replace ATOS, he also revealed the company’s “chilling” record of incompetence, discrimination and alleged fraud“. Thinking back to when ATOS was initially awarded the contract for WCAs, there were similar concerns around the unsuitability of ATOS, and we all know the outcome of that appointment.

It appears the DWP have completely failed to learn from the ATOS debacle and is planning to enter into another disastrous contract with a seemingly corrupt company, all for Corporate Greed.  Further the DWP seems to be continuing the rhetoric of  blaming us being ill; refusing to acknowledge their attacks on poorest and most vulnerable people through both the continuing  scapegoating and their discriminatory Policies, are in any way responsible.

The ‘leaking’ of these two announcements today suggest the DWP are maintaining their insidious behaviour, softly ensuring their plans emerge into the public psyche in an attempt to build public support:

‘the poorest people are choosing the higher paying benefit to avoid looking for work, because  they are lazy, the DWP are doing the majority a favour by stopping these idlers take the easy option, and are bringing in a company who will stamp this out’

What can we can fight back against this? Johnny Void suggests we gather the information necessary to take Maximus out of the picture and I agree; but I also believe we need to demonstrate WHY sick and disable people need the extra money to survive, lets collect your stories that demonstrates precisely what we do with the difference between JSA and ESA, because if we don’t – We Will Lose it!

 

DWP Breaks its Own Rules when threatening Support Group Members

Further to my post earlier this week, today another example of the most seriously ill disabled people being told they must attend work focussed interviews or else be sanctioned; never mind this is in direct conflict with the DWP’s own guidance which states :

Support Group

If you have a condition that severely limits what you can do, you’ll be in the support group. You’ll not be expected to look for work and we won’t expect you to take place in any work-focussed interviews”.

How the DWP are going to Spin this is yet yo been seen; what I do know is this is yet another time this unelected Government has deliberately broke it’s own rules and then Lied about it!

This ongoing Discriniation against Disabled People is  Totally Unacceptable & I can only hope people say ENOUGH

It is Time to Join the Truth Campaign and Sign the Petition  to STOP The SPIN.

#NOWPetition #Impeach DWP

Another Government ‘Fag packet’ proposal for Benefit Sanctions & Cuts ?

Rarely do I come across a Tory Policy proposal that makes me both Smile (albeit at the irony) and Shudder (with fear); but today’s report in the Telegraph does exactly this; “Hundreds of thousands of benefit claimants face being stripped of their state allowances if they refuse to undergo treatment for anxiety and depression“, this worries me on several levels.

The article quotes their source as saying “We know that depression and anxiety are treatable conditions. Cognitive behavioural therapies work and they get people stable again but you can’t mandate people to take that treatment“; I totally agree with the closing proviso but the apparent claim CBT works for depression and anxiety is False.

Firstly Depression is not a ‘one size fits all’ disorder, there are different types of this debilitating illness, and a notion it can be conveniently summed up to enforce potentially damaging treatment is downright dangerous as well as being futile.  This position applies equally to Anxiety, again there are different types of Anxiety disorders which require different specialist treatments; therefore this all embracing decision, being discussed by Politicians based upon saving money is, to me, terrifying.

Cognitive Behaviour Therapy works to enable people understand the relationships between their feelings, thinking, behaviours and environment, and to identify ways in which these can become problems; ergo CBT only works when depression and, or anxiety arises from internal conflict. Personally I have found CBT to be of little or no use when clinical issues, i.e. schizophrenia, is  the primary causes of the disorder; further where external factors are reinforcing the disorders, I personally have found CBT only has limited benefits.  I am not purporting CBT has no use in supporting depressive or anxiety sufferers, but it is not the only form of treatment necessary for enabling improved mental health. Given the mandate for this scheme is the ” loads of people who claim ESA (for Depression and Anxiety) who undergo no treatment whatsoever“, it is difficult to understand how the Government is to utilise fully trained CBT workers anyway?

Minsters are already piloting different ways of implementing this scheme, four JobCentres are currently “combining “talking therapies” with employment support“; soon we will witness  “group work” to help build the “resilience” of individuals who are out of work and suffering with poor mental health” the “hiring specialist private organisations outside the NHS and welfare system to take control of providing a combination of psychological and employment support to claimants” and finally “online tests and therapies at improving individuals’ health and job prospects“. These four trials will then be assessed, presumably with cost effectiveness, being the primary focus’ so no prizes for guessing which ‘approach’ the Government will adopt – more work for the nudge unit coming up?

These trials are a joint effort between the DWP & Dept of Health, and emerge from the report Talking Therapies: a four year plan of action  and initially was targeted at people 18-65  as an “economic case on which it was based showed that providing therapy could benefit not only the individual but also the nation, by helping people come off sick pay and benefits and stay in or return to work“. There we have it another quick fix based on Finance First and presumably will form the basis of yet another area of Cuts in Welfare; but once again aimed at sick and disabled people

As I acknowledge at the beginning of this post, the Government Ministers making these decisions about how mental health sufferers should be treated, deny participation in these trials will be mandatory, seeming to recognise willingness to participate is central any talking treatment working. However the Telegraph states “Conservatives could include the proposal for mandatory treatments in the party manifesto next year as part of the next phase of reforms to the welfare state” and I can’t help but think they are probably accurate in this.

Will this turn out to be yet another example of how the Government says one thing and then does another? If you agree with me in this Join the TRUTH campaign

#NOWPetition #ImpeachDWP

Real Issues with Welfare reform – Part II

On April 8 I wrote my first official DEAEP Blog, regarding the support we offer, this week Alex & I attended his Tribunal. we arrived at the venue, in a central hotel, to find the tribunal receptionist was extremely chatty; he happily informed the room that there were people from all over the UK, booked to attend, he went on to state every one of the claimants had waited for well over a year to get a hearing! He also informed us that for the day the Tribunal service had paid for 6 meeting rooms –  for hearings, waiting rooms and a room for the court clerks; add the expense for this to the salaries of at least 6 panellists (possibly 8), 3 clerks and the receptionist; and I shudder to think how much this must have cost?!

We were called in on time and given that the DWP had already agreed that Alex should be in the Support group in February 2013, we were expecting this to be a open & shut case but…NO. Firstly the DWP had failed to inform the panel they had AGREED they’d made a mistake, luckily the accepted the letter we had as full evidence; however instead of recognising that the DWP had already accepted Alex was too ill to work, and therefore he had every right to receive the back pay, the judge of the panel grilled Alex for 45 minutes on his inability to work in November 2012. We were made to explain, against each of the ESA qualifying points, that how for a whole 3 months, before the DWP agreed Alex’s health made him unable to work, this was the case. The Dr on the panel on at least four occasions referred to how, in his medical opinion, Alex’s handwriting on the appeal letter clearly indicated Parkinsons, as did his observation of Alex’s body; but the judge persisted in her questions, reducing Alex to tears on one occasion! Why was this – for MONEY – and for a far less amount than the 2 panellists earned in hour we were in there, never mind the the costs of the day’s Tribunal as outlined above; but for an amount that means Alex can afford to live a little more comfortably.

The good news is Alex WON his tribunal but…surely as the DWP had already conceded, wouldn’t it have been far more cost effective, never mind humane, for them to have merely paid him the money he was owed? According to Channel 4 Employment and support allowance (ESA) tribunals cost the taxpayer £66m in 2012/13, and this fails to consider the hidden costs of anxiety and stress to the claimant, both personally and in terms of the Health/support services, consider all of this and what a ludicrous situation this proves to be.

I don’t presume Alex’s case to be unique and given the number of successful tribunals by sick and, or disabled people, this is yet more evidence the current ESA/WCA process is severely flawed.