#Housebound #ESA and Surviving #Coronavirus

I am one of an unknown number of people unable to leave their home for much or all of the time; I live with a number of Chronic conditions all of which mean I function on a High dose of Medication.
This is a person post outlining the problems I, along with doubtless many many others, are facing during the Corvid19 Crisis.
Before I begin I do want to say how very pleased I am to see self employed people and those who’s jobs are at risk, supported £ during this time.
However, I’m also Very Concerned for the number of #Sick & #Disabled people Surviving on #ESA, and maybe #PIP. Firstly lets look at Food & Household Essentials; how the Heck are we supposed to manage the Increase in aforementioned goods AND How are we Even supposed to Access the #Essentials??
The Supermarkets are talking well, with special shopping hours for Vulnerable people but; what use is that to those of us unable to get to these venues?
It has just taken me over half an hour to desperately struggle to unload my delivered shopping from the crates stacked on my doorstep, into my hall, all the while feeling the need to apologise to the delivery driver who stood watching.  I then grappled with the transfer of goods to my kitchen;  and then of course I had to put it away. Usually the drivers bring my goods into the kitchen and help me unload onto the worksurfaces meaning I do not have to bend; and with osteoarthritis of the spine, This is an Amazing help.
All the above took place without me receiving over 50% of my order, including potatoes, bread and mince; all of which were supposedly available last night?! So now I have to go over another week without basics before another delivery slot is available!
Is it too much for supermarkets to consider not only providing shopping Times for #Vulnerable people, to line up their online shopping sites with their stock and Prioritise #Basics for housebound Shoppers?
I am actually fortunate at the minute as my daughter, who is also disabled,  is braving the virus to help me and my 90 year old mum; but not everyone is as lucky.
The second issue is medication & Pain support, I have only recently been forced to wait for a week without one lot of my meds; and the withdrawal was sheer torment. The virus is causing problems with both accessing and delivering essential medication to us housebound folk and I am hearing NO support form the government for this. Further my appointment for steroid injections next week has been cancelled; I do accept this might seem petty to those who do not Exist in Chronic pain but, I assure you it is not. These injections are the ONLY respite I get; once a year,  for a while, I live without the feeling of constantly being stabbed in my neck.
I do get this is not a priority over those who are fighting to survive Coronavirus but they are one of lifelines.
Lastly for today the problem is surviving the issues my Mental Health problems are causing during isolation; like everyone else I’m inundated with often contradictory tales of what we should or should not do to manage the virus. Personally my chronic depression is really playing the ‘what is the point of life’ game; and the problems outlined above, along with the worries of financially coping are causing these thoughts to blow up expedientially.
I am turning to online learning, You Tube, and my lifesaving Kindle for ways to distract both the news and my inner voices.
If anyone is experiencing similar issues to me, and fancies setting up an online campaign about the problems of disabled, housebound people, or wants to sound off Please leave me a comment; a like minded bunch of people online is just what I need right now
Hoping you ALL Stay Safe and As Well as possible xx

The Desperate Fight Within Disabled Campaigning

This is my first post in a few months, there’s been several reasons for this including an horrendous bout of depression, an operation and masses of work for DEAEP, our new course starts next week. There also been one issue that has taken over what little energy I’ve had left after this; a month ago I was asked if I’d be interested in working on the setting up of a unifying group for disabled people to fight the Government.

Anyone that’s read my blogs is well aware I’m committed to collective working and collaboration, most of my posts end with some form of plea for Unity or Togetherness, so of course I said yes. To my horror, in this very short period of time several of those willing to do the backroom work have been bullied and verbally assaulted by the same people who purport to believe in campaigning and challenging for our rights. So much so, that a number of the individuals willing to use their spare energy have said they can no longer continue; I simply do not understand this!

What the Fuck is going on, when those of us Fighting for our lives under this Tory regime of Austerity and Cuts, are attacked by our peers; isn’t it enough that people are dying through the bullying of JobCentre & other DWP staff, without resorting to this behaviour ourselves?

When #homelessness is soaring and people are being evicted from their homes due to the costs of the #BedroomTax, or the #BenefitCap; when the loss of ESA or PIP, through flawed and biased ‘assessments is causing people to choose to stay warm or fed; what will happen to those on #ILF that lose their Care packages in 3 weeks? Isn’t all of this this enough to make people angry enough to challenge the Government and to work WITH their peers and not attack them?

I totally agree that different opinions are essential for any project to get off the ground, and this means different beliefs being aired and people feeling frustrated their thoughts aren’t being taken into account; I’m aware not everyone feels a unifying organisation is the way forward and that’s fine. I recognise the pressure we are ALL under and realise that sometimes we say things we might not mean, I also acknowledge that on social media, the words we write can often come across as something different to what we actually meant but…this is NOT what happened here; this was selective Bullying. People were reading derogatory comments and joining in, it was made Personal, through targeted attacks on individuals; all who have been involving in online campaigning for the past 4 years at least. If this behaviour had happened on the street and from a group of non-disabled people, many of us would be, (rightly in my book) shouting about Hate Crime; this is how serious I take what has has occurred.

The outcome is not only, have the abused individuals felt the need to leave the unifying group, several have left the world of disability activism completely; and what a loss! All that knowledge and experience held by these individuals, lost from campaigning and no longer available to work on the real Fight.

To close, I want to state some of us are continuing to work on developing a unifying project for disabled people, a group that can challenge the Government with authority; but it is with great sadness that not only will the work be much more difficult without the lost expertise, but that we’ve lost true campaigners to bullying from within.

I hope that those involved in these abusive attacks realise the damage they’ve caused, not only to the individual victims of their abuse but to the disabled movement; remember when our enemies see this behaviour it only serves to further their cause.

ONLY TOGETHER CAN WE FIGHT FOR OUR SURVIVAL