I know this is not the topic I usually rant about but my wonderfully strong, totally independent & resilient mum, who’s 82 next Saturday was early this year finally diagnosed with Osteoporosis (brittle bones).
She was given a very strong drug to take once a week which completely laid her off her feet and left her unable to do anything for 4/5 days – most of the week; something not only unworkable in practice, but that she as many others of her age, found absolutely loathsome.
I persuaded her to return to her GP and request a different treatment, this resulted in another drug that, although making her ill for 2 days a week, allowed her to function and continue to manage her life; a price she was more than happy to pay.
3 month ago this second drug became ‘difficult’ to obtain, and we were chasing pharmacists all over Leicester to find one which carried it; with most of them offering her the original drug as a suitable substitute!
Finally last week my mum was forced to go back to her GP who gave her the real reason – the second drug was “simply too expensive” and she was told to either take the drug that made her so ill or “go without”. So mum is too ill lo do anything or risks fractures!!
A letter to the GP is being negotiated as I write (me wanting to give it straight, mum needing to be more diplomatic because ‘it’s about my Dr’)
I saw the link below and wondered if my mums situation is an example of budget being more important than LIFE http://www.guardian.co.uk/society/2012/aug/03/patients-sue-nhs-access-drugs